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Understanding lipoedema

Lipoedema is a long-term (chronic) condition that affects the limbs and mainly occurs in women. The buildup of fatty tissue leads to bigger limbs, discomfort, and pain.

Lipoedema is a disease that is often misunderstood or mistaken for obesity or lymphoedema. In contrast to lymphoedema, there is no fluid collection in the tissue. Instead, there is a disproportionate build-up of fatty tissue, mostly in the legs, which leads to pain.

Lipoedema cannot be cured, but it is not necessarily progressive when managed effectively. This article provides insights into the symptoms, diagnosis, and holistic management of lipoedema.

Lipoedema almost exclusively occurs in women

The disease often appears around times of hormonal change, such as puberty, pregnancy, use of birth control pills, menopause, or significant weight gain. Lipoedema mainly occurs in the lower limbs (legs, thighs, and buttocks) and often leads to reduced mobility, a negative body image, low self-esteem, and psychological stress.

Illustration of a woman with lipoedema, showing typical body shape with symmetrical swelling in both legs and hips, while the waist, hands, and feet remain unaffected.

Typical bodyshape

What are the symptoms?

Lipoedema usually appears symmetrical in shape and size across both legs and, sometimes, arms. The body above the hips, and the hands and feet, remain unaffected. This often results in shape disproportion – a narrow waist and larger hips and thighs. The area is often painful and tender to touch due to an inflammatory process and a lack of oxygen in the tissue. Accompanying issues such as depression or anxiety disorder can also increase the pain, creating a vicious cycle. Learn more about lipoedema signs and symptoms here.

People with lipoedema often describe the following:

  • Weight and shape disproportion between the lower and upper half of the body
  • Pain/discomfort in the skin and tissues of the legs or arms
  • Affected areas are tender to touch
  • Hands and/or feet appear normal, with no obvious changes.
  • Loss of distinct ankle shape, with thickening around the ankles
  • Other female members of the family may have similar symptoms

Diagnosing & managing lipoedema

So far, there is no dedicated test or tool to diagnose lipoedema. Any other underlying diseases with similar symptoms must be ruled out. There is likely a high number of unreported cases because the disease is often misunderstood or misdiagnosed. Conversely, some patients are diagnosed with lipoedema even though they do not sufficiently meet the criteria. However, the awareness of lipoedema is growing through education of Healthcare Professionals. You should consult an experienced Healthcare Professional if lipoedema is suspected.

It may take time to get a diagnosis. In the meantime, you can contribute to a healthy lifestyle with regular exercise and balanced nutrition. Overweight can worsen your lipoedema symptoms. However, you should avoid any short-term dieting. Most diets fail in the end and can result in higher weight than before. Learn more about eating and living healthy here.

Getting a diagnosis from a Healthcare Professional is the first step towards managing lipoedema successfully.

Understanding your disease is one of the most important tools for managing it. Learn more about lipoedema here.

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